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Dog Owners
FAQs

The Canine Cruciate Registry relies on the involvement of both surgeons and dog owners to contribute their information to build an evidence-base around surgical treatment for canine cruciate ligament rupture. This page provides dog owners with information about how the project is run and how we handle your data.

This page is also available in printable format.
Download the FAQs for Dog Owners .

What is the Canine Cruciate Registry (CCR)?
The CCR is a database of information about cruciate surgery in dogs from across the UK. The aim is to improve the outcomes of cruciate surgery performed on dogs. Patient outcomes will be evaluated using feedback from owner questionnaires and by monitoring any complications that might arise. The information you provide will be very useful in helping us to identify which procedures work best and what factors may be associated with good and bad outcomes.
What does it involve?
If your dog has been diagnosed with a cruciate rupture, your vet will ask if you wish to be involved with the cruciate registry project. Once your vet has submitted your details, you will receive an email asking you to register and fill in a questionnaire about your dog’s lameness. When your dog has had surgery, your vet will submit data about the surgical procedure performed. You will then receive regular emails asking about how your dog is doing. You will be asked to complete the same short questionnaires and asked to report any complications. The registry is free to use for both owners and veterinary surgeons.
Who runs the CCR?
The Canine Cruciate Registry is funded by RCVS Knowledge, who are dedicated to advancing the quality of veterinary care for the benefit of animals, the public, and society. They are the charity partner of the RCVS (Royal College of Veterinary Surgeons). The registry and online portals are managed on a day-to-day basis by Amplitude Clinical Outcomes, a global leader in online registry software.
How do you obtain my consent?
You do not need to take part, but we hope we have shown how your participation will help your dog and other dogs. If you would like to participate, we need your consent. Your decision to take part, or not, will not affect the treatment your dog receives in any way. You are free to withdraw your consent from the registry at any time, after which only anonymised data will remain.

Alternatively, if your vet is participating in the CCR, you can register directly at www.caninecruciateregistry.org/take-part.

What personal data do you collect?

With your consent, we collect the following personal information and process it securely under Article 6 of the General Data Protection Regulations and UK Data Protection Act 2018.
· Your email address
· Your name
· Personal security information, in the form of a question to secure your account.

Can anyone else access my data?
RCVS Knowledge can access your data to administer the registry and provide feedback to your veterinary surgeon. Amplitude can access your data to administer the registry. Anonymised data may be made available to other organisations, for example, academic establishments for research purposes. Each request to access data will be considered on its merits by the registry steering group. No other organisation will be able to access your identifiable personal information apart from your veterinary surgeon and other members of the practice team involved in your dog’s healthcare. The joint data controllers are RCVS Knowledge Canine Cruciate Registry and your veterinary surgeon. The data processor is Amplitude Clinical Outcomes, our IT partner. To view the levels of data security on the platform visit amplitude-clinical.com/information-governance-information
What happens to my data?
We will use personal data solely to contact you to assess the progress of your dog. The registry will use the data collected from questionnaires to analyse the care and outcomes across a large number of dogs who have had surgery. Submitted animal data will be anonymised to ensure you as an individual cannot be identified by third parties. Your vet will have access to the data about your dog to evaluate the treatments they perform and assess clinical progress.
How long will you keep my data?
Your personal data will be stored for the length of time you wish to remain part of the register. At your request, your personal data can be removed from the register at any time. However, to ensure consistency for our results, we will keep all anonymised animal-related data indefinitely.
How long do I need to take part?
It would be great to hear from you about your dog and their cruciate surgery for as long as possible after the operation. The more information we get, the better conclusions we can make from it. Most studies only show information about the first few years after an operation so if you keep telling us information for as long as possible it will be really useful.

If you no longer wish to complete questionnaires, you no longer own the dog, or sadly your dog passes away, please let us know, and we will stop contacting you. You can also do this directly from any follow-up emails we send you.

Can I withdraw consent?
You can withdraw consent at any time without explanation. Results up to the period of withdrawal will be used in an anonymised format.
How can I find out more information?
More information is available on this website: www.caninecruciateregistry.org

RCVS Knowledge’s Privacy Policy is available at knowledge.rcvs.org.uk/rcvs-knowledge-privacy-policy

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If at any point you have any clinical concerns about your dog you should contact your veterinary surgeon directly, not via the Canine Cruciate Registry.

If you have any questions regarding the platform itself, including login and password details, your profile on the platform and any other technical questions, please contact Amplitude Clinical Outcomes:
customer.support@amplitude-clinical.com

If you have any questions related to Canine Cruciate Registry project, please contact: ebvm@rcvsknowledge.org.

We respond to all emails within five working days.

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